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Monday, August 16, 2010

the heart of a jedi

the diagram on the left is a healthy heart. the diagram on the right is one similar to the diagram the pediatric cardiologist* drew for us last month.
1- is the pulmonary hypoplasia- the blood flow to the lungs is compromised because of stunted growth in that area.
2- is the VSD- a hole is located between the left and right ventricle
3- is the aortic stenosis- there is a blockage in the aortic valve. the doctor explained it as similar to covering the garden hose with your thumb. it's not completely blocked, but enough to cause the outflow of blood to be at a high velocity. this causes it to balloon on the other side.

so- we go back to sibley heart center- this time to the CHOA(children's health care of atl) egleston campus on wednesday morning. this is the surgery center and we are scheduled to meet with a surgeon and take a tour after our fetal echo. our pediatric cardiologist just wants us to get familiar with the surroundings and the doctors that may be involved.

please cover us in prayer on wednesday. i am praying for a miracle, but we could learn some bad news so- ask for the grace to hear it, understand it, and accept it.

*okay- i have to tell you how fabulous our pediatric cardiologist is. his name is dr. henaro sabino and he works for sibley heart center. he was so engaging and compassionate. he really took his time with us- even after talking with us at length in the scan room he brought us into an office, and proceeded to draw a diagram and answer more questions.
if ANYONE in the atlanta area needs a pediatric cardiologist, i CANNOT recommend him enough.


  1. We are praying for you and your family.

  2. (((Liz))) I will continue to pray for you all. May God continue to give you Grace each day!

  3. I know this route all to much. Praying for this upcoming appt. St Matthew, (our baby with a major heart defect) pray for baby Jedi.

  4. Thank you for sharing this journey with us. It is an honor to walk it with you.

  5. So nice to have a clearer picture to explain all the larger words being passed around. What a nice answer to your prayers to have a doctor who has your thoughts in mind and actually takes time with you and Jedi! Will pray for continued graces to accompany His will :)

  6. thanks everyone! it'll be nice walking into the appointment wednesday and know that i am armed with God's grace bc of your prayers.


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