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Thursday, July 29, 2010

new ultrasound

to play catch up i probably need to include some tidbits of info we have learned
we found out that our baby is a boy!
we named him jedidiah joseph- but the kids started calling him jedi joe.
the perinatologist diagnosed jedi with alobar holoprosencephaly and tetrology of fallot
we met with a pediatric cardiologist last friday- july 23rd and learned that jedi's heart defect isn't tetrology of fallot. tetrology of fallot includes 4 heart defects, one of them being overriding aorta. jedi doesn't have this. he has the vsd, the pulmonary hypoplasia, and the aortic stenosis- but not the overriding aorta.

and so now i will continue with the peri appt yesterday

i had a perinatologist appointment yesterday. chris texted me a little before and said he wasn't going to make it. i kind of began to get nervous. i worried that there was going to be some big news or that the peri was going to be insensative. she wasn't exactly great during the last appointment.
but my worries were ill founded.
the ultrasound went fine. the tech even used the 3d wand and printed up some pictures to bring home to the kids. i'll have to see if i can upload some.
it was really neat to finally see his face. he's already such a sweetie.
i asked for some referals to doctors who deliver at northside- the pediatric cardiologist we saw last week suggested northside because they were the only ones with a top level nicu in atlanta(i think emory midtown has a good one, but it's just so far away). she gave me some names that i probably won't use bc they aren't tested by the ican ladies.
i even asked the tech. i explained that i had a prior c-section and she informed me that i would be at a higher risk for uterine rupture. i had to force myself not to roll my eyes.
prior to this "informative" lesson she had told me that jedidiah was going to be small. he is below the 5th percentile. i told her that after my c-section i went on to vbac an 8+ lb girl without a problem. not sharing the fact that at the time of delivery i was on 46 units of pitocin. i'm pretty sure my uterus can handle jedidiah's birth. at least i am trusting God that this is so.


  1. Just a note to let you know we've been praying for you & Jedi Joe. You're such a strong & beautiful family.

    I thought Northside was the same level NICU as most Atlanta hospitals, and only, iirc, Grady has a level I or whatever NICU?

    God bless you all!!

  2. thanks so much for your prayers jos.
    i think the levels go beyond just the numbers. they then have letters to denote just where their strength is. heart, lungs, brain, etc.

    i will ask more about the difference of nicus at my next cardiologist appt on wednesday.


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